Hello all well it is almost my birthday and I am still here. I made it I have been feeling pretty good I got the best present today from angel elizabeths family it made me smile sooooo big I have finally lost a little more fluid  I am so happy to be celebrating my birthday tomorrow thank you all for your well wishes and cards I love reading them muah huggs and kisses Natalie Nevaeh Coble

hello all I made it it is christmas and i am still here ha ha cancer I had a pretty good day I opened all of my presents BY MYSELF it was so much fun i got everything I wanted of course the new meds i am on seem to be working a little bit but I am very sleepy and did sleep most of the day I hope I dont keep my mom up all night again I also caught santa leaving my house and he laughed ho ho ho mom said there was no way i would see him huh shows her never doubt a child I told her i was going to catch him thank you all for your prayers and a special prayer to all of the familys living without your angels tonight 6 more days to go muah huggs and kisses Natalie Nevaeh Coble

hello all today the nurse is comming to see me it seems like i have fluid in my lungs again (very disturbing to hear) but i am still smiling and happy and i have already made it past what the doctors thought so thank you for your prayers and keep them comming my christmas present is i want to turn 5 only 11 more days to go woohooo thank you all again for you prayers support and mail it makes me smile muah huggs and kisses natalie nevaeh coble .....24 central ave hull ma 02045

hello all so sorry it has been so long since we have posted alot has happened as you all know i am on lasix well my potassium level dropped critically low i am already on my max dose of potassium and eating bananas and drinking orange juice so we had to stop the lasix and wow the fluid is getting bad natalie has had fluid in her lower left lobe but we are somehow making it go away the oncologist said they will do no further treatment they wont even treat her kidney stones (i pull them out of her) ouch and she has been having alot of trouble pooping as well so we had to get that out too the swelling is getting bad hospice says she probably wont make it much longer but i have faith and i have hope for 13 more days we have already overcome so may odds whats 13 more days thank you all for your loving words prayers and birthday cards they make me smile muah huggs and kisses natalie and family

my benefit was so much fun thank you to all that attended. hospice was here today and it appears that natalies tumor is growing fast. at this point they say we will be lucky to have her on her birthday (december 31 st) this has proven to be very hard to let go but in the end i want her happy and running and playing she doesnt have any iv's or an ng tube but she cant even sit up anymore and her heart rate and breathing has changed alot her head it tilting and she just wants to sleep thank you to all that have been there for us and helped us through this horrific fight she has almost won (she will beat cancer one way or the other) i just want to put a bandaid on her brain and say it will be ok thank you all for you prayers and please continue them
                                    brandy (princess natalies mom)

hello all today seems to be a good day hospice and the wound care team were here today I am getting a new bed and a new pad for my wheelchair I am on so many meds now but seem to be doing better I am a little more swollen from the adema but they hope to increse my lasix or however you spell it I am hoping to get the swelling down before sunday (my benefit) I have been eating alot less partially because I cant really sit up anymore but other than that all is well thank you all for your support muah huggs and kisses Natalie Nevaeh Coble

Hello all mom cant sleep up all night watching me we have a busy day today the pact team the new hospice team my visiting oncologist and my visiting nurse are all comming out this morning to see me alot for a little 4 year old all at once thank you to everyone that is helping with my  benefit we all really  appreciate it I will try to post after all the nurses leave thank you muah huggs and kisses Natalie Nevaeh Coble

Hello all the visiting oncologist came to see me today .So my treatment plan has changed a little bit I now have a P.A.C. team (pallative care) and also I am now on hospice but I will still be able to recieve my chemo as soon as we can get all of this bleeding under control physically I am changing but my happy spirit is comming back that makes my mommy and daddy happy thank you to all that are praying for me please continue to pray that I get better thank you muah huggs and kisses Natalie Nevaeh Coble

hello all sorry it has been so long but we have been really busy I went in for chemo but it was a no go I was loosing blood clots that worried the doctors so no chemo for me but I did leave the hospital on friday on a nice dose of morphine my butt split open on the way to the hospital so now I have a new bed that helps with that I havent been able to even sit up much but I am still happy and am hoping to attend my bebefit on the 29th thank you to all that have prayed and prayed for me and thank you to all that are attending both in person and in spirit thank you much love huggs and kisses Natalie Nevaeh Coble

How do you go from a 30 lb happy go lucky kid to an 80 lb kid in a wheelchair in the matter of 4 months and why doesnt anyone care to try to help our children ?  this is cancer...this is terminal... those are words a parent should never hear. The anger has set in and I am mad as hell.who can I blame this on?She hasnt had her "honeymoon period" she has been getting sicker and sicker every day since june 17 2009. You may be able to raise your kids and maybe take a few pics a year I have to try to cram a life time of memories in a few short months.It is hard to try to remember everyday and it is even hard to remember her "normal" or whatever that is errrr i just hate cancer thank you all for your prayers and support brandy (princess natalie nevaeh coble)

hello all sorry I havent posted in a bit I have been agrivated at the doctors hospitals ect. I went back to the hospital and they decided I needed surgery to drain and help her kidneys yes dx kidney stones huge ones and lotts of them so they put in a stent from my kidney to my bladder and i will have stage 2 of the process done in dec (lazer surgery) hopefully this will make me feel better not what we hoped for but kidney stones are better than lots of other things thank you all for your prayers and kind thoughts muah huggs and kisses Natalie Nevaeh Coble

Hello all well I am off on another dipg mission. Natalie is in alot of pain again and kinda funny at the same time the pain struck the visiting nurse called and asked if she could come out to see her.So she came and listened to her belly and she couldnt find any bowel sounds.This is not good we just cant seem to catch a break with this thing it is one thing after another.more x-rays and scans this just makes me mad it is not fair she didnt do anything to deserve this.so here we go to get through another hospital visit I hope not a surgery I will let you know what is going on as soon as possible please pray for natalie as she fights this beast off again.muah huggs and kisses Natalie Nevaeh Coble

Hello all it is saturday my lungs sound clear my cough is gone I am feeling so much better so many people have been saying prayers for me and I really think it helps my belly is feeling better I havent been receiving any treatment due to my illnesses so my mom will talk to the doctors on monday to see what the next steps are in this ugly battle please keep me in your prayers and thoughts muah huggs and kisses Natalie Nevaeh Coble

Hello all so another day another ambulance ride. I had to go to the hospital yesterday. I was rolling around crying in pain of course that made my mommy cry. I got to the hospital (the ambulance men were nice)lol and they did a x ray of my belly and found out even though I have been pooping i am completley full of poop (ouch) so more meds for me I am home now and feeling much better thank you all for your prayers and thoughts they help me when I am down.muah huggs and kisses Natalie Nevaeh Coble

Hello all I have been sick with two ear infections and a respiratory infection .I got a nebulizer and seem to be doing better I did not go to school all week I am getting tired and dont want to do as much my family is comming over tonight to have pizza and just to be together We are trying to get me back to walking but it is getting harder and harder for me I cant even stand up any more it hurts my back and my leggs but i am still here kickin cancers butt so please continue to pray with me muah huggs and kisses Natalie Nevaeh Coble

Hello all sorry it has been so long since the last post we have had alot going on i am still on oxygen to help me brethe my mom got a call from my doctor last week saying another neuroseurgeon looked at my mri results and it turns out my mom and dad were right i do have hydrocephilis so i guess that was causing alot of my problems so off to childrens hospital to get another mri or so we thought I have been having some problems with my heart lately too so it was beating way to fast (over 200 a minute) and my resperations were up over 34 so they did a chest x-ray an ekg and a ct scan so they cleared me to have my mri so back to childrens we went to get the mri they said the tumor still looks the same it didnt shrink at all yet from the radiation so on to a new plan I am still waiting to hear from the neuroseurgeon to decide what to do about the hydrocephilis i am hoping to get well enough to try something else to help my brain and maybe to get me up walking again someday because i want to run and play thank you all for your continued prayers and thoughts muah huggs and kisses Natalie Nevaeh Coble

Hello all it is Monday I went to the doctors today.errrrrr I hate the doctors they said I need another mri (go figure) I am sick of being sick .sick of going to hospitals and doctors and all of the machines.Thank god tomorrow is school I get to be a kid again.I love school and my teachers  thank you all for your continued prayers for me and my family muah huggs and kisses Natalie Nevaeh Coble

Hello all its tuesday. sorry it has been awhile but I have been feeling better (that makes my mom and dad real busy).We went out to eat last night my request of course.I still use my oxygen but I have been more alert I have to go to school soon I leave around 1200 and come home at 300. I almost always bring a stuffed animal with me as they keep me safe.Thank you cousin sammy burger and mac n cheese for leaving me a comment they made me giggle and thank you all for your prayers and kind words.muah huggs and kisses Natalie Nevaeh Coble

hello all i am having a hard time right now and need everyones prayers my visiting nurse and oncologist came to my house today i am having a real hard time breathing so i need oxygen now my spirit is still up as i am a cancer fighting warrior please keep me in your prayers as i go through a real hard time

Hello all sorry its been awhile I have been getting ready to start my first day of school.My mom is sad of course. I am the one that made the decision to go back to school I really just want to live a normal life and forget all the bad stuff(cancer) I hope all of my friends remember me I do look a little different.My mom said all of my teachers and friends are so excited to see me. My brother and sister are excited for me and themselves as well because i go to there school so alot of people already know my story and for you that are just reading this from the letter sent out at school welcome to my site feel free to follow e everyday to know how i feel or to know what is going on if i am in the hospital if you would like to know more anout this cancer go to icouldbeyourchild.org really good but sad site thank you all for your continued prayers muah huggs and kisses Natalie Nevaeh Coble

hello all it is sunday i am feeling a lil better (false hope) i am eating good and sitting up a little better i havent felt sick from the chemo yet hopefully i wont there is a bug going around my house so my parents are trying to keep me safe hope to be up and mobile soon my parents are doing everything they can to try to get me strong again thank you all and go bless muah huggs and kisses Natalie Nevaeh Coble

hello all i am feeling a little better today. still cant sit up or walk or anything but my spirit is doing much better . this cancer is so unfair the stuff that it does to me is not fun i am looking forward to starting school on the 10th (i love school).please say a prayer for my fellow dipg friend that has sadly lost her battle rip elizabeth. thank you all for your continued support muah huggs and kisses Natalie Nevaeh Coble

Hello all it is now thursday I just got home today from the hospital. I am not doing so good I had alot of seizures and really scared my parents. they called it altered mental status. I cant walk anymore and now have to rely on a wheelchair. I had an mri at the hospital and they said my tumor was bigger and there was alot of blood vessels feeding the tumor so now I have started chemo and will start another chemo at the same time in two weeks thank you all for you constant prayers for me I think that is what got me through this one muah huggs and kisses Natalie Nevaeh Coble

Hello all it is monday the 31st. we just got back from disney. I am not feeling well and have been real sick lately. I am headed to childrens hospital emergency room to see what is wrong and to have another ct scan. rip to my fellow dipg angel elizebeth from rockland ma everyone please say a prayer for her family.please also say a prayer for me as I head to the hospital . thank you all for all of your support muah huggs and kisses love Natalie Nevaeh Coble

Hello all it is getting closer to me going to Florida. I am really excited I cant wait to meet all of my friends .Life has been easy lately as I am now done with radiation .I really miss my doctor he was so sweet to me. i am leaving the 24th and i wont be back until the 30th hehe just in time for school .I am going to have my follow up mri on sept 9th and will get my results on the 14th so please pray for a miracle for me. thank you all for your love and support muah huggs and kisses Natalie Nevaeh

Hello world another day done and another day closer. I am so excited to see the princesses .I did great in radiation and I even woke up in a good mood again thank you all for all of your support.My family and I really appreciate it.muah huggs and kisses Natalie Nevaeh

Hello all today was a good day. I went to radiation and woke up in a good mood. I ate kfc for lunch on the way home. (it stayed in my belly) I am almost done with my radiation only 3 days left. I will have a party at the hospital when I am done. I met with a nice person from Make A Wish today I am going to disney world. I cant wait to meet the princesses I told my mom I am buying one of everything there lol.I will make sure to post a whole lot of pictures. thank you all to date you have donated 160.00 dollars thank you so much muah huggs and kisses Natalie Nevaeh

Hello world today is Monday and I am home. yay five days left of radiation.I did ok today and now that they have adjusted my meds I am feeling alot better. Thank you all for your prayers through my tough times.p.s. I got alot of new beads from my stay at the hospital. muah huggs and kisses Natalie Nevaeh

Hello world today is Thursday.I am very sick sorry we could not write yesterday. But I am in the hospital in icu.My heart is racing at 160.I cant walk .and for some reason my stomache is bleeding.I am non responsive.I dont know why I am so sick.I had a ct scan yesterday followed by an mri.sadly they say my tumor is growing.And the sack in the middle is bigger.Hopefully I wont slip into a coma. Witch could have devistating results.But I am a fighter and I will try with all my might to make it through this. And be back with you all again soon. Thank you for all of your support in this tough time. muah huggs and kisses Natalie Nevaeh

Hello all so sorry but it has been a rough couple of days.My mom met with my doctor on monday and errrrrrr. More bad news ....seems I have some sort of a sack inside my tumor. Not sure what it is and due to the location we will never know. We are coping as I guess we have to . I am really tired .Idont eat much either.Boy this is getting rough. Thank you to all that follow and support us through this.Muah huggs and kisses Love Natalie Nevaeh

Hello all it is Saturday.Sorry I did not write yesterday.It was Friday and I got my tube out. I was so busy I wanted to do so much stuff.I went to the beach I went to the store. I had so much fun .I am getting tired very easily and my hair has fallen out into a mohawk.Thank you so much for donating to me as i am getting closer to getting what I need. You all make me and my family feel so special. Just to know that people are thinking of us. And wanna help us fight this. Thank you all Love Natalie muah huggs and kisses

Hello world today is Thursday. I am having a very good day today.Feeling good just a little bit tired. Nothing I cant handle.My hair is really falling out now.Almost looks like snow.I havent yet noticed my hair. My mom does a good job of covering it up as I am only losing it on the sides and in the back.I am so excited that I get my tube out tomorrow. I get to be normal for two days.Thank you to mrs.Whalen for making my fight a little easier.There truly are angels watching over me. Until tomorrow world thank you muah huggs and kisses Natalie Nevaeh

Hello all it is wednesday errrrrrrrr i want my tubie out!!!!! I am getting so mad at this thing in my chest. I want to run,jump,play,ride my bike and swim just like every other child. In case you cant tell i am sick of being sick and i just want to be normal. Today is a hard day kinda tired and sick.moms says i have a case of the grumps today.Two more days of radiation then my tube comes out. I will be kinda normal for two days. I hope tomorrow is a better day.thank you all for your prayers,muah huggs and kisses Natalie

Hello everyone today was a good day. I went to the hospital in good spirits. I had my radiation my porta cath is bothering me a little. want it out but mom said not til Friday. my doctor cut down my steroids again. That means my brain is doing good. I was a little bit dizzy when i woke up today i hate that stuff. so until tomorrow i just want to say thank you. and i feel ok today .muah huggs and kisses Natalie

Hello all today is July 27,2009.It is a Monday a scary day for me.i got my port accessed today. And sadly i am starting to lose my hair .My mom and Dad might have found a clinic in Houston Texas. That might be able to help. I am a little tired today as i go on my 18th day of radiation. I am starting to eat less as they cut down my steroids. (hopefully my tumor is shrinking)!

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