OUR LITTLE ANGEL: November 2009

Why and How You Can Help

Please help me battle this inoperable brain tumor. I have finished my radiation treatments and my chemotherapy treatments have been stopped indefinitly due to my rapidly declining health. I am battling this beast with everything I have but it is starting to catch up with me now. My hospice nurse has told my mother that I may not make it to Christmas or my birthday and basically that all the fluid buildup is taking over my body. We are praying and hoping that I can make until then but have no idea how my health issues will play out in the forthcoming weeks. After being in contact with The Burzynski Clinic over the past few months we have determined that I will not be able to take part in his clinical trial. Mostly because of my health concerns. And with that being said we need more help now than ever before because mom and dad are still out of work so they can focus on me, my health, and keeping the rest of the household in good spirits. If anybody would like to contact us please do by emailing us at thenataliecoblefund@verizon.net. Any donations would be appreciated and would help with my daily needs that come along with this tumor. Thank you again and please don't forget to leave your comments down below so I have something good to hear everyday. Any donations can be sent to: Sovereign Bank 523 Nantasket Avenue Hull, MA 02045 C/O The Natalie Coble Fund

Tuesday, November 24, 2009

hello all today seems to be a good day hospice and the wound care team were here today I am getting a new bed and a new pad for my wheelchair I am on so many meds now but seem to be doing better I am a little more swollen from the adema but they hope to increse my lasix or however you spell it I am hoping to get the swelling down before sunday (my benefit) I have been eating alot less partially because I cant really sit up anymore but other than that all is well thank you all for your support muah huggs and kisses Natalie Nevaeh Coble

Friday, November 20, 2009

Hello all mom cant sleep up all night watching me we have a busy day today the pact team the new hospice team my visiting oncologist and my visiting nurse are all comming out this morning to see me alot for a little 4 year old all at once thank you to everyone that is helping with my benefit we all really appreciate it I will try to post after all the nurses leave thank you muah huggs and kisses Natalie Nevaeh Coble

Wednesday, November 18, 2009

Hello all the visiting oncologist came to see me today .So my treatment plan has changed a little bit I now have a P.A.C. team (pallative care) and also I am now on hospice but I will still be able to recieve my chemo as soon as we can get all of this bleeding under control physically I am changing but my happy spirit is comming back that makes my mommy and daddy happy thank you to all that are praying for me please continue to pray that I get better thank you muah huggs and kisses Natalie Nevaeh Coble

Monday, November 16, 2009

hello all sorry it has been so long but we have been really busy I went in for chemo but it was a no go I was loosing blood clots that worried the doctors so no chemo for me but I did leave the hospital on friday on a nice dose of morphine my butt split open on the way to the hospital so now I have a new bed that helps with that I havent been able to even sit up much but I am still happy and am hoping to attend my bebefit on the 29th thank you to all that have prayed and prayed for me and thank you to all that are attending both in person and in spirit thank you much love huggs and kisses Natalie Nevaeh Coble

Wednesday, November 11, 2009

How do you go from a 30 lb happy go lucky kid to an 80 lb kid in a wheelchair in the matter of 4 months and why doesnt anyone care to try to help our children ? this is cancer...this is terminal... those are words a parent should never hear. The anger has set in and I am mad as hell.who can I blame this on?She hasnt had her "honeymoon period" she has been getting sicker and sicker every day since june 17 2009. You may be able to raise your kids and maybe take a few pics a year I have to try to cram a life time of memories in a few short months.It is hard to try to remember everyday and it is even hard to remember her "normal" or whatever that is errrr i just hate cancer thank you all for your prayers and support brandy (princess natalie nevaeh coble)

Wednesday, November 4, 2009

hello all sorry I havent posted in a bit I have been agrivated at the doctors hospitals ect. I went back to the hospital and they decided I needed surgery to drain and help her kidneys yes dx kidney stones huge ones and lotts of them so they put in a stent from my kidney to my bladder and i will have stage 2 of the process done in dec (lazer surgery) hopefully this will make me feel better not what we hoped for but kidney stones are better than lots of other things thank you all for your prayers and kind thoughts muah huggs and kisses Natalie Nevaeh Coble

My Story

Hello, my name is Natalie Coble. My mother gave birth to me on December 31, 2004. I have two brothers and one sister. Their names are Franklin, Machaylah, and Steven. We live a very normal life full of fun, laughter and most importantly, lots of love. The fun and laughter all came crashing to a halt on June 16, 2009. I remember waking up late that morning and getting ready for school. I was still tired and feeling a little bit dizzy, but nothing seemed to hurt anywhere. My dad noticed I was extra tired that morning, while getting ready for the bus, but nothing seemed to be wrong. I was just too tired, so I thought. I went to school happy as can be, until my teacher noticed my right eye starting to wander. She decided to test my vision and grew more and more concerned. She called my mom and asked her if I had bumped my head and then requested that we go to the doctor's and get a neurological exam. We went to South Shore Hospital and had them perform a neurological exam and they decided we should do a CT scan, which would only show the worst of the worst. After that was done we waited for the results. That didn't take long at all. The doctor told us I had a mass in my brain. He arranged an ambulance ride to Children's Hospital in Boston so we could have further tests and an MRI(that's when things started to get really scary for me). I really didn't like the ambulance ride at all because it scared me so much. We got to the hospital and one of the maintenance workers gave me a balloon. I thanked him a lot for that because it really cheered me up and it was my favorite color, pink. So we had more tests and more tests which took all night. I had to sleep at the hospital because I wasn't getting my MRI until the next morning. Mom and dad stayed with me throughout the night to make sure I was as safe and happy as possible. That day was so long and tiring for me that I didn't wake up until the doctors already did my MRI the next morning. It ended up being a good thing because that really would have scared me. Now all we had to do was wait for the team of doctors to tell us the results from the MRI. So we waited and waited and finally one doctor came in to tell us the diagnosis. He said to us that I had an inoperable tumor in the pons area of the brain stem. In doctor's words, a diffuse intrinsic pontine glioma. Our jaws dropped and our hearts stopped for a moment while we took it all in. They told us all we could do was try to shrink the tumor with radiation and chemotherapy in a range of different ways. They gave us a few days to decide what to do and we did just that. We chose to go through with radiation and no chemo for now. Radiation requires me to be sedated during the treatment so we had a portacath inserted in my chest so I wouldn't have to get poked by a needle every day for the next 30 days. I also have to take an anti-inflammatory medicine to keep the swelling down and boy does that stuff make me hungry. I also take anti-nausea medication so I don't get too sick from the radiation and the other medications. As the days go by we can only hope and pray that the tumor is shrinking. We have been battling our ups and downs for over a month now and have completed half of my treatment so far. Every day I go to the hospital for my radiation I become less and less scared. As we battle this cancerous tumor my mom and dad try any and everything to figure out what to do after the radiation if it doesn't shrink the tumor any. They have been looking all over the internet and have come across a couple of good options but will need all of your help raising thousands of dollars for my next course of treatment. So before you close your eyes for your good night's sleep, look at the skies above and pray for me tonight. Me, my mom and my dad greatly appreciate everyone's support throughout this unfortunate experience in our lives. THANK YOU EVERYONE FOR YOUR OUTPOURING OF SUPPORT!!!

Birthday Cards for Princess Natalie

Please show Natalie all your love and support by sending her a birthday card for her 5th birthday on New Year's Eve, December 31st.

Send one send two send twenty. The more people that know the more birthday cards she has to be read to her. Feel free to tell all your friends, family, co-workers, and anybody else that would love to put a smile on a sick child's face on what will probably be her last birthday if she can even make it to her birthday.

Please mail all birthday cards to:
Princess Natalie
24 Central Avenue
Hull, MA 02045

OUR LITTLE ANGEL

Why and How You Can Help

Tuesday, November 24, 2009

Friday, November 20, 2009

Wednesday, November 18, 2009

Monday, November 16, 2009

Wednesday, November 11, 2009

Wednesday, November 4, 2009

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