OUR LITTLE ANGEL: July 2009

Why and How You Can Help

Please help me battle this inoperable brain tumor. I have finished my radiation treatments and my chemotherapy treatments have been stopped indefinitly due to my rapidly declining health. I am battling this beast with everything I have but it is starting to catch up with me now. My hospice nurse has told my mother that I may not make it to Christmas or my birthday and basically that all the fluid buildup is taking over my body. We are praying and hoping that I can make until then but have no idea how my health issues will play out in the forthcoming weeks. After being in contact with The Burzynski Clinic over the past few months we have determined that I will not be able to take part in his clinical trial. Mostly because of my health concerns. And with that being said we need more help now than ever before because mom and dad are still out of work so they can focus on me, my health, and keeping the rest of the household in good spirits. If anybody would like to contact us please do by emailing us at thenataliecoblefund@verizon.net. Any donations would be appreciated and would help with my daily needs that come along with this tumor. Thank you again and please don't forget to leave your comments down below so I have something good to hear everyday. Any donations can be sent to: Sovereign Bank 523 Nantasket Avenue Hull, MA 02045 C/O The Natalie Coble Fund

Thursday, July 30, 2009

Hello world today is Thursday. I am having a very good day today.Feeling good just a little bit tired. Nothing I cant handle.My hair is really falling out now.Almost looks like snow.I havent yet noticed my hair. My mom does a good job of covering it up as I am only losing it on the sides and in the back.I am so excited that I get my tube out tomorrow. I get to be normal for two days.Thank you to mrs.Whalen for making my fight a little easier.There truly are angels watching over me. Until tomorrow world thank you muah huggs and kisses Natalie Nevaeh

Wednesday, July 29, 2009

Hello all it is wednesday errrrrrrrr i want my tubie out!!!!! I am getting so mad at this thing in my chest. I want to run,jump,play,ride my bike and swim just like every other child. In case you cant tell i am sick of being sick and i just want to be normal. Today is a hard day kinda tired and sick.moms says i have a case of the grumps today.Two more days of radiation then my tube comes out. I will be kinda normal for two days. I hope tomorrow is a better day.thank you all for your prayers,muah huggs and kisses Natalie

Tuesday, July 28, 2009

Hello everyone today was a good day. I went to the hospital in good spirits. I had my radiation my porta cath is bothering me a little. want it out but mom said not til Friday. my doctor cut down my steroids again. That means my brain is doing good. I was a little bit dizzy when i woke up today i hate that stuff. so until tomorrow i just want to say thank you. and i feel ok today .muah huggs and kisses Natalie

Monday, July 27, 2009

Hello all today is July 27,2009.It is a Monday a scary day for me.i got my port accessed today. And sadly i am starting to lose my hair .My mom and Dad might have found a clinic in Houston Texas. That might be able to help. I am a little tired today as i go on my 18th day of radiation. I am starting to eat less as they cut down my steroids. (hopefully my tumor is shrinking)!

Thursday, July 23, 2009

New site

Excuse the appearance for a couple of days while we undergo some serious website construction.

My Story

Hello, my name is Natalie Coble. My mother gave birth to me on December 31, 2004. I have two brothers and one sister. Their names are Franklin, Machaylah, and Steven. We live a very normal life full of fun, laughter and most importantly, lots of love. The fun and laughter all came crashing to a halt on June 16, 2009. I remember waking up late that morning and getting ready for school. I was still tired and feeling a little bit dizzy, but nothing seemed to hurt anywhere. My dad noticed I was extra tired that morning, while getting ready for the bus, but nothing seemed to be wrong. I was just too tired, so I thought. I went to school happy as can be, until my teacher noticed my right eye starting to wander. She decided to test my vision and grew more and more concerned. She called my mom and asked her if I had bumped my head and then requested that we go to the doctor's and get a neurological exam. We went to South Shore Hospital and had them perform a neurological exam and they decided we should do a CT scan, which would only show the worst of the worst. After that was done we waited for the results. That didn't take long at all. The doctor told us I had a mass in my brain. He arranged an ambulance ride to Children's Hospital in Boston so we could have further tests and an MRI(that's when things started to get really scary for me). I really didn't like the ambulance ride at all because it scared me so much. We got to the hospital and one of the maintenance workers gave me a balloon. I thanked him a lot for that because it really cheered me up and it was my favorite color, pink. So we had more tests and more tests which took all night. I had to sleep at the hospital because I wasn't getting my MRI until the next morning. Mom and dad stayed with me throughout the night to make sure I was as safe and happy as possible. That day was so long and tiring for me that I didn't wake up until the doctors already did my MRI the next morning. It ended up being a good thing because that really would have scared me. Now all we had to do was wait for the team of doctors to tell us the results from the MRI. So we waited and waited and finally one doctor came in to tell us the diagnosis. He said to us that I had an inoperable tumor in the pons area of the brain stem. In doctor's words, a diffuse intrinsic pontine glioma. Our jaws dropped and our hearts stopped for a moment while we took it all in. They told us all we could do was try to shrink the tumor with radiation and chemotherapy in a range of different ways. They gave us a few days to decide what to do and we did just that. We chose to go through with radiation and no chemo for now. Radiation requires me to be sedated during the treatment so we had a portacath inserted in my chest so I wouldn't have to get poked by a needle every day for the next 30 days. I also have to take an anti-inflammatory medicine to keep the swelling down and boy does that stuff make me hungry. I also take anti-nausea medication so I don't get too sick from the radiation and the other medications. As the days go by we can only hope and pray that the tumor is shrinking. We have been battling our ups and downs for over a month now and have completed half of my treatment so far. Every day I go to the hospital for my radiation I become less and less scared. As we battle this cancerous tumor my mom and dad try any and everything to figure out what to do after the radiation if it doesn't shrink the tumor any. They have been looking all over the internet and have come across a couple of good options but will need all of your help raising thousands of dollars for my next course of treatment. So before you close your eyes for your good night's sleep, look at the skies above and pray for me tonight. Me, my mom and my dad greatly appreciate everyone's support throughout this unfortunate experience in our lives. THANK YOU EVERYONE FOR YOUR OUTPOURING OF SUPPORT!!!

Birthday Cards for Princess Natalie

Please show Natalie all your love and support by sending her a birthday card for her 5th birthday on New Year's Eve, December 31st.

Send one send two send twenty. The more people that know the more birthday cards she has to be read to her. Feel free to tell all your friends, family, co-workers, and anybody else that would love to put a smile on a sick child's face on what will probably be her last birthday if she can even make it to her birthday.

Please mail all birthday cards to:
Princess Natalie
24 Central Avenue
Hull, MA 02045

OUR LITTLE ANGEL

Why and How You Can Help

Thursday, July 30, 2009

Wednesday, July 29, 2009

Tuesday, July 28, 2009

Monday, July 27, 2009

Thursday, July 23, 2009

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