OUR LITTLE ANGEL: September 2009

Why and How You Can Help

Please help me battle this inoperable brain tumor. I have finished my radiation treatments and my chemotherapy treatments have been stopped indefinitly due to my rapidly declining health. I am battling this beast with everything I have but it is starting to catch up with me now. My hospice nurse has told my mother that I may not make it to Christmas or my birthday and basically that all the fluid buildup is taking over my body. We are praying and hoping that I can make until then but have no idea how my health issues will play out in the forthcoming weeks. After being in contact with The Burzynski Clinic over the past few months we have determined that I will not be able to take part in his clinical trial. Mostly because of my health concerns. And with that being said we need more help now than ever before because mom and dad are still out of work so they can focus on me, my health, and keeping the rest of the household in good spirits. If anybody would like to contact us please do by emailing us at thenataliecoblefund@verizon.net. Any donations would be appreciated and would help with my daily needs that come along with this tumor. Thank you again and please don't forget to leave your comments down below so I have something good to hear everyday. Any donations can be sent to: Sovereign Bank 523 Nantasket Avenue Hull, MA 02045 C/O The Natalie Coble Fund

Monday, September 21, 2009

Hello all it is Monday I went to the doctors today.errrrrr I hate the doctors they said I need another mri (go figure) I am sick of being sick .sick of going to hospitals and doctors and all of the machines.Thank god tomorrow is school I get to be a kid again.I love school and my teachers thank you all for your continued prayers for me and my family muah huggs and kisses Natalie Nevaeh Coble

Wednesday, September 16, 2009

Hello all its tuesday. sorry it has been awhile but I have been feeling better (that makes my mom and dad real busy).We went out to eat last night my request of course.I still use my oxygen but I have been more alert I have to go to school soon I leave around 1200 and come home at 300. I almost always bring a stuffed animal with me as they keep me safe.Thank you cousin sammy burger and mac n cheese for leaving me a comment they made me giggle and thank you all for your prayers and kind words.muah huggs and kisses Natalie Nevaeh Coble

Friday, September 11, 2009

hello all i am having a hard time right now and need everyones prayers my visiting nurse and oncologist came to my house today i am having a real hard time breathing so i need oxygen now my spirit is still up as i am a cancer fighting warrior please keep me in your prayers as i go through a real hard time

Thursday, September 10, 2009

Hello all sorry its been awhile I have been getting ready to start my first day of school.My mom is sad of course. I am the one that made the decision to go back to school I really just want to live a normal life and forget all the bad stuff(cancer) I hope all of my friends remember me I do look a little different.My mom said all of my teachers and friends are so excited to see me. My brother and sister are excited for me and themselves as well because i go to there school so alot of people already know my story and for you that are just reading this from the letter sent out at school welcome to my site feel free to follow e everyday to know how i feel or to know what is going on if i am in the hospital if you would like to know more anout this cancer go to icouldbeyourchild.org really good but sad site thank you all for your continued prayers muah huggs and kisses Natalie Nevaeh Coble

Sunday, September 6, 2009

hello all it is sunday i am feeling a lil better (false hope) i am eating good and sitting up a little better i havent felt sick from the chemo yet hopefully i wont there is a bug going around my house so my parents are trying to keep me safe hope to be up and mobile soon my parents are doing everything they can to try to get me strong again thank you all and go bless muah huggs and kisses Natalie Nevaeh Coble

Saturday, September 5, 2009

hello all i am feeling a little better today. still cant sit up or walk or anything but my spirit is doing much better . this cancer is so unfair the stuff that it does to me is not fun i am looking forward to starting school on the 10th (i love school).please say a prayer for my fellow dipg friend that has sadly lost her battle rip elizabeth. thank you all for your continued support muah huggs and kisses Natalie Nevaeh Coble

Thursday, September 3, 2009

Hello all it is now thursday I just got home today from the hospital. I am not doing so good I had alot of seizures and really scared my parents. they called it altered mental status. I cant walk anymore and now have to rely on a wheelchair. I had an mri at the hospital and they said my tumor was bigger and there was alot of blood vessels feeding the tumor so now I have started chemo and will start another chemo at the same time in two weeks thank you all for you constant prayers for me I think that is what got me through this one muah huggs and kisses Natalie Nevaeh Coble

My Story

Hello, my name is Natalie Coble. My mother gave birth to me on December 31, 2004. I have two brothers and one sister. Their names are Franklin, Machaylah, and Steven. We live a very normal life full of fun, laughter and most importantly, lots of love. The fun and laughter all came crashing to a halt on June 16, 2009. I remember waking up late that morning and getting ready for school. I was still tired and feeling a little bit dizzy, but nothing seemed to hurt anywhere. My dad noticed I was extra tired that morning, while getting ready for the bus, but nothing seemed to be wrong. I was just too tired, so I thought. I went to school happy as can be, until my teacher noticed my right eye starting to wander. She decided to test my vision and grew more and more concerned. She called my mom and asked her if I had bumped my head and then requested that we go to the doctor's and get a neurological exam. We went to South Shore Hospital and had them perform a neurological exam and they decided we should do a CT scan, which would only show the worst of the worst. After that was done we waited for the results. That didn't take long at all. The doctor told us I had a mass in my brain. He arranged an ambulance ride to Children's Hospital in Boston so we could have further tests and an MRI(that's when things started to get really scary for me). I really didn't like the ambulance ride at all because it scared me so much. We got to the hospital and one of the maintenance workers gave me a balloon. I thanked him a lot for that because it really cheered me up and it was my favorite color, pink. So we had more tests and more tests which took all night. I had to sleep at the hospital because I wasn't getting my MRI until the next morning. Mom and dad stayed with me throughout the night to make sure I was as safe and happy as possible. That day was so long and tiring for me that I didn't wake up until the doctors already did my MRI the next morning. It ended up being a good thing because that really would have scared me. Now all we had to do was wait for the team of doctors to tell us the results from the MRI. So we waited and waited and finally one doctor came in to tell us the diagnosis. He said to us that I had an inoperable tumor in the pons area of the brain stem. In doctor's words, a diffuse intrinsic pontine glioma. Our jaws dropped and our hearts stopped for a moment while we took it all in. They told us all we could do was try to shrink the tumor with radiation and chemotherapy in a range of different ways. They gave us a few days to decide what to do and we did just that. We chose to go through with radiation and no chemo for now. Radiation requires me to be sedated during the treatment so we had a portacath inserted in my chest so I wouldn't have to get poked by a needle every day for the next 30 days. I also have to take an anti-inflammatory medicine to keep the swelling down and boy does that stuff make me hungry. I also take anti-nausea medication so I don't get too sick from the radiation and the other medications. As the days go by we can only hope and pray that the tumor is shrinking. We have been battling our ups and downs for over a month now and have completed half of my treatment so far. Every day I go to the hospital for my radiation I become less and less scared. As we battle this cancerous tumor my mom and dad try any and everything to figure out what to do after the radiation if it doesn't shrink the tumor any. They have been looking all over the internet and have come across a couple of good options but will need all of your help raising thousands of dollars for my next course of treatment. So before you close your eyes for your good night's sleep, look at the skies above and pray for me tonight. Me, my mom and my dad greatly appreciate everyone's support throughout this unfortunate experience in our lives. THANK YOU EVERYONE FOR YOUR OUTPOURING OF SUPPORT!!!

Birthday Cards for Princess Natalie

Please show Natalie all your love and support by sending her a birthday card for her 5th birthday on New Year's Eve, December 31st.

Send one send two send twenty. The more people that know the more birthday cards she has to be read to her. Feel free to tell all your friends, family, co-workers, and anybody else that would love to put a smile on a sick child's face on what will probably be her last birthday if she can even make it to her birthday.

Please mail all birthday cards to:
Princess Natalie
24 Central Avenue
Hull, MA 02045

OUR LITTLE ANGEL

Why and How You Can Help

Monday, September 21, 2009

Wednesday, September 16, 2009

Friday, September 11, 2009

Thursday, September 10, 2009

Sunday, September 6, 2009

Saturday, September 5, 2009

Thursday, September 3, 2009

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