BLOGGER TEMPLATES AND TWITTER BACKGROUNDS »

Why and How You Can Help

Please help me battle this inoperable brain tumor. I have finished my radiation treatments and my chemotherapy treatments have been stopped indefinitly due to my rapidly declining health. I am battling this beast with everything I have but it is starting to catch up with me now. My hospice nurse has told my mother that I may not make it to Christmas or my birthday and basically that all the fluid buildup is taking over my body. We are praying and hoping that I can make until then but have no idea how my health issues will play out in the forthcoming weeks. After being in contact with The Burzynski Clinic over the past few months we have determined that I will not be able to take part in his clinical trial. Mostly because of my health concerns. And with that being said we need more help now than ever before because mom and dad are still out of work so they can focus on me, my health, and keeping the rest of the household in good spirits. If anybody would like to contact us please do by emailing us at thenataliecoblefund@verizon.net. Any donations would be appreciated and would help with my daily needs that come along with this tumor. Thank you again and please don't forget to leave your comments down below so I have something good to hear everyday. Any donations can be sent to: Sovereign Bank 523 Nantasket Avenue Hull, MA 02045 C/O The Natalie Coble Fund

Friday, December 10, 2010

My Mom, she tells a lot of lies

she never did before.

From now until she dies,

she'll tell a whole lot more.

Ask my Mom how she is

and because she can't explain,

She will tell a little lie

because she can't describe the pain.

Ask my Mom how is she,

She'll say "I'm alright."

If that's the truth, then tell me,

why does she cry each night?

Ask my Mom how is she,

she seems to cope so well.

She didn't have a choice you see

nor the strength to yell.

Ask my Mom how she is,

"I'm fine, I'm well, I'm coping."

For Gods sake Mom, just tell the truth

just say your heart is broken.

She'll love me all her life,

I loved her all of mine.

But if you ask her how is she

she'll lie and say she's fine.

I am here in Heaven.

I cannot hug from here.

If she lies to you don't listen,

Hug her and hold her near.

On the day we meet again,

we'll smile and I'll be bold.

I'll say, "You're lucky to get in here, Mom

with all the lies you told!"

Sunday, November 28, 2010

too much time

it has been to long since i have seen your beautiful face or heard your beautiful voice i miss you so much my heart feels empty without you and the house seems all to quiet i miss your belly laughs i was inspired by you to help and to follow all children well i feel weak i feel like i cant take the pain of losing another child i care so much about i hear relapse scans growth tests and it scares me it is time for the holidays and i feel so alone i wish you were still here frankie is having a very hard time latley dealing without you how is a mom supposed to go on everyday and act like everything is ok its not your not here with me and you are not in a better place a better place would be in my arms i am tired of seeing a cute bald smiling kid as the face of childhood cancer you were the reality suffering pain hell you couldnt even smile that is my reality and so many others so now tell me how am i supposed to go on and live my life without you the pain is just to much to take people tell me how beautiful you are and were even in your passing a good friend put it to me well a child in a casket doesnt look beautiful they look cold and dead i will never ever forget that smell its all burned into my memory that i will never forget hold your kids close cuz you just never know momma loves you baby girl and have a good nap my lil buddy that just lost his battle on thanksgiving i love you mister muah
                                   natalies momma
                                    brandy

Sunday, September 5, 2010

well baby girl it is September childhood cancer awareness month I thought you would be here with me this month to help be the childrens voice but you were silenced by this ugly monster so I will be your voice I will spread awareness for you and all your little friends up there it is hard to believe you have been gone for so long I miss you everyday my only hope is that people hear me and understand what this can do and in such a short time you should be starting school on tuesday but instead i will be her with a broken heart talking to the sky if you are reading this and have never suffered the loss oof a child to cancer or any other reason please never push your kids away when they ask you for one more hug or one more kiss goodnight what I would give for just one more love you baby girl    love brandy (angel natalies momma)

Thursday, September 2, 2010

No Title





--Sent from my Virgin Mobile!


--
Sent from my Virgin Mobile

Wednesday, June 16, 2010

one year ago today we took you to the hospital had a ct scan done and found out you had a mass in your brain stem then off to childrens we went so so sad baby not even a year i miss you so much i cant even begin to explain the heartache this just isnt fair i love you so much and think of you everyday until we meet again sweet baby hugs and kisses mommy loves you

Friday, May 7, 2010

If roses grow in heaven, please pick a bunch for me, place them in my daughters arms and tell her they're from me. Tell her that I love and miss her, and when she turns to smile, place a kiss upon her cheek and hold her for a while, because remembering her is easy, I do it everyday, but there's an ache within my heart that never goes away...                 I miss you so so much baby how will I get through mothers day without you my heart hurts just to think about it this is not fair this is not right I hate this I wish I could come up to heaven if only one time just to hug and kiss your sweet face just one more time I LOVE YOU BABY GIRL FOREVER IN MOMMYS HEART

Saturday, May 1, 2010

IN PA GETTING READY FOR BED SO SO EXCITED TO MEET CARLY AND HER FAMILY ALMOST COULDNT BRING MYSELF TO COME HER BUT DIPG WILL NOT SIT BY AND STOP GROWING WHILE I MOURN THE LOSS OF MY DAUGHTER SO TODAY I WILL FIGHT I WILL FIGHT FOR THE KIDS THAT ARE STILL HER FIGHTING THE KIDS THAT DONT EVEN KNOW THAT THEY HAVE DIPG YET AND THE ONE THAT ARE ANGELS I WILL NOT STOP I THINK THIS IS WHAT I NEEDED TO GET ME BACK I NEED TO DO SOMETHING I NEED TO HELP NATALIE HAS BEEN SILENCED BUT I STILL HAVE A VOICE AND I TEND NOT TO SHUT UP DIPG WATCH OUT YOU WILL BE STOPPED I THINK I HAVE FIGURED OUT WHY NATALIE GOT DIPG BECAUSE I WILL FIGHT I WILL SPREAD AWARENESS PEOPLE WILL KNOW WHAT A YELLOW AND GREY RIBBON MEANS BECAUSE LIKE MYSELF THERE ARE ALOT OF REALLY STRONG PARENTS WHO HAVE ALSO LOST THEIR CHILDREN SO TOGETHER WE WILL ALL FIGHT AND WE WILL WIN FIGHT CARLY FIGHT

Friday, April 16, 2010

ok so tomorrow morning at 9:00 am i get the results from natalies autopsy i dont know what i am hoping to hear but please pray that natalie has a story to tell that will help other children fighting this horrid tumor god bless all the family's still fighting this beast and help to guide the family's that dont have there children tonight i will never stop spreading awareness we need a cure please help this is not fair i should be getting natalies report card not autopsy results i miss you and love you baby girl
                                           angel kisses and hugs
                                           angel princess natalies mom

Wednesday, April 14, 2010

little miss princess i miss you so much i love you i am so hurt my heart hurts watchng steven everyday say wheres natalie when is she comming home she still sleeping in her purple bed? wow that hurts i have been thinking about doing a walk for natalie to raise money for the kids still fighting i know that is what you would want i have been on facebook alot lately and wow you have alot of new friends in heaven that is so sad i know i need to do something to honor your life and try to help with research for a cure one day baby one day there will be no more pain no more tears and no more cancer i love and miss you princess
                                              love ya to heaven and back
                                                      mommy

Sunday, April 4, 2010

FIRST FAMILY ORIENTED HOLIDAY SINCE YOU HAD TO GO HOW WILL I DO THIS HOW WILL I SIT THERE WITH A SMILE ON MY FACE WHEN ALL I WANT TO DO IS SCREAM I FIXED YOUR GRAVE LAST NIGHT SO THE KIDS DONT GET UPSET WOW THERE WAS ALOT OF WATER DOWN THERE (NATALIE GOT FLOODED) IT LOOKS MUCH BETTER NOW I HOPE YOU LIKE YOUR FLOWERS AND YOUR EASTER BASKET I BET YOU HAD AN AMAZING EASTER EGG HUNT WITH ALL THE KIDS UP THERE I BET UNCLE STEVEN HELPED HIDE THEM I HOPE HE DIDNT HIDE THEM TO HARD FOR YALL TO FIND I LOVE YOU AND MISS YOU SO MUCH I REALLY DONT KNOW WHAT TO SAY AS THE PAIN I FEEL TODAY IS ALMOST TO MUCH TO DEAL WITH I LOVE YOU PRINCESS NEVER FORGET THAT MUAH HUGS AND KISSES
                                   LOVE
                                      MOMMY

Thursday, April 1, 2010

omg the financial toll this has taken on us the bank account is negative rent is a month late bills arent paid i want to climb into a hole and hide this sucks i already lost my daughter how much harder cant this get we had to pay for all services before they would hold them sooo bills dont get paid when it cost over ten thousand dollars to hold services errrrr life sucks today

Wednesday, March 17, 2010

thinking of you alot today

so miss natalie this is hard i know you would never trade where you are now to come back here but the selfishness in me wants you back although i do not want you sick seeing what cancer did to you was almost more than i could bare i have been told i am a strong woman but really i dont want to be strong i want you i want your hugs and i want to hear you yell out mom i need you or is it time for my meds but then i think about it no five year old should ever say is it time for my meds or when is my next scan or when is kathy and alice comming to take my blood or is janet (hospice nurse) almost here god this hurts no child should ever feel this kind of suffering i saw another child at walmart a little girl about 4 years old and she had cancer you could tell trademark signs bald skinny frail weak i froze and her mom looked at me and said shes only sick then just shrugged her shoulders while giving me a somewhat dirty look then i just began to cry i almost didnt say anything but then i did i said i am so sorry this is not fair no child should ever feel this pain and she said that i would never understand how hard it is to watch your kids like this i looked at her smiled and said i do understand i have been where you are are i know childrens and brigham and womens and dana farer like the back of my hand for i also have had a child with cancer and she then asked how my child was doing and i said she is cancer fee now and in no more pain she smiled then i said yup she had the best doctor ever fix her his name was god and she looked at me and just cried see even when you have a child with cancer you still want to believe that they will make it that they will be the one but you never know if people could just understand this and love their children just a little bit more kiss them one more time watch a movie together and take that extra picture and never forget this could be you one day so please help spread awareness
                       love and hugs
                    brandy (angel natalie's mom)forever 5

Friday, March 5, 2010

ONE MONTH

SO ITS BEEN ONE MONTH WITHOUT YOU AND IT FEELS LIKE AN ETERNITY I JUST WANT TO HOLD YOU AND KISS YOU AND TELL YOU HOW MUCH I LOVE YOU I MISS IT I MISS TAKING CARE OF YOU NO MATTER HOW HARD IT GOT I STILL LOVED IT THERE WASNT ANYTHING THAT THEY THREW AT ME THAT I COULDNT DEAL WITH UNTIL THAT AWFUL DAY I COULDNT MAKE YOU BREATHE I COULDNT MAKE YOU TAKE THAT BREATH I AM SO SORRY I DID NOT KNOW HOW TO FIX YOU I DID TRY SO HARD I WISH I HAD TRIED HARDER THIS IS SO MUCH HARDER THAN I EVER THOUGHT IT WOULD BE JUST ONE MORE HUG ONE MORE KISS ONE MORE TIME TO TELL YOU I LOVE YOU IF YOU ARE READING THIS BUT HAVE NEVER LOST A CHILD LET ME TELL YOU THIS IS REAL SHE IS GONE I WILL NEVER GET HER BACK AGAIN CANCER HAS TAKEN MY BABY NO MORE HUGS NO KISSES NO FIRST DAY OF KINDERGARDEN IT WAS ALL STOLEN FROM ME SO PLEASE HELP RAISE AWARENESS FOR MY CHILD THE CHILD NEXT DOOOR AND MAYBE EVEN YOUR OWN CHILD SOMEDAY CHILDHOOD CANCER SUCKS

Wednesday, February 24, 2010

YouTube - natalienevaeh's Channel

YouTube - natalienevaeh's Channel

Saturday, February 6, 2010

hello so sorry i just couldnt find the words to type my sweet natalie passed away yesterday friday feb 5 2010 at 6:52 am i already miss her so much she was such a fighter and finally had her time of peace through this for the last 20 hours or so of her life were pain free and peaceful she didnt feel any pain i will post as soon as i have more info about services all are welcome as you all showed great sympathy and said alot of prayer for my angel love all of you for what you have done for my family i love you baby girl forever 5 muah huggs to you
         broken hearted brandy
     angel natalies mom <--that hurts
   @---}----- a rose for natalie

Friday, February 5, 2010

SO SORRY I HAVE NOT YET POSTED BUT WE HAVE BEEN HAVING A VERY HARD DAY WE ARE NOT SURE WHAT HAPPENED BUT NATALIE IS UNRESPONCIVE IN A COMA HER HEART IS RUNNING ABOUT 200 BEATS PER MINUTE OR HIGHER HER RESPIRATORY RATE IS IN THE 60'S THIS IS ALL HORRIBLE NEWS I HAVE TOLD NATALIE IT IS OK TO GO AND AM EVEN ENCOURAGING HER TO BUT THIS IS A HARD THING TO DO AS I WOULD LOVE TO HOLD HER HERE FOREVER I AM TRYING TO STAY STRONG AS I DO NOT WANT HER TO HAVE TO LAY HERE AND SUFFER ANY LONGER PLEASE KEEP PRAYING FOR MY PRINCESS TO BE HEALED
              WITH A BROKEN HEART
               BRANDY (PRINCESS NATALIES MOM)

Friday, January 29, 2010

AS MOST OF YOU ALREADY KNOW NATALIE HAS BEEN GOING THROUGH ALOT. THE FLUID IS GETTING MUCH WORSE HER FACE AND HEAD ARE SO SWOLLEN THAT HER EAR IS ACTUALLY INSIDE OF HER HEAD NOW SO WE HAVE DECIDED TO TAKE HER INTO THE HOSPITAL FOR SOME SCANS SHE IS HAVING A HEAD CT SCAN AN ABDOMINAL CT SCAN AN ULTRASOUND AND MULTIPLE X-RAYS I AM SCARED I DONT KNOW IF I REALLY WANT TO KNOW THE RESULTS THE DOCTORS HAVE TOLD ME THAT THEY REALLY DONT THINK THEY CAN DO ANYTHING. BUT THEY ARE WILLING TO ATLEAST TRY I WILL LET EVERYONE KNOW WHEN WE GET BACK WHAT HAPPENED AND WHAT THEIR PLANS ARE FROM HERE SO PLEASE SAY LOTTS OF PRAYERS FOR MY PRINCESS TODAY. THANK YOU ALL FOR YOUR CONTINUED PRAYERS
                        BRANDY (PRINCESS NATALIE)

Thursday, January 21, 2010

SO SORRY WE HAVE NOT POSTED BUT I JUST COULD NOT FIND THE WORDS TO TYPE I STILL REALLY CANT BUT YOU ALL HAVE BEEN FOLLOWING HER AND PRAYING FOR HER SO HERES THE NEWS THE FLUID IS BACK AND IT IS BAD IT CAME ON VERY FAST AND THERE IS MORE THAN THERE EVER WAS SHE HAS FLUID IN HER LUNGS AN AT THIS POINT THEY ARE NOT SURE IF THEY CAN DO ANYTHING FOR HER EVEN TO CHANGE HER OR CLEAN HER THE PAIN IS INSANE NO ONE SHOULD FEEL PAIN LIKE THAT ESPECIALLY A CHILD SHE HAS ALSO BEEN COMPLAINING THAT THERE IS ALOT OF PRESSURE IN HER EARS AND IT SEEMS TO BE GETTING WORSE EVERYDAY MAYBE HYDROCEPHALIS ALOT OF BLOOD COMMING OUT OF HER NOSE AND IT IS GETTING HARD TO BREATHE I AM NOT SURE WHAT CAUSED ALL OF THIS BUT IT ALL STARTED LAST MONDAY I WILL KEEP YALL POSTED WITH ANY CHANGES WHEN YOU GO TO BED TONIGHT PLEASE SAY A SPECIAL PRAYER FOR MY PRINCESS THANK YOU FOR YOUR CONTINUED PRAYERS  BRANDY (PRINCESS NATALIES MOM)

Wednesday, January 13, 2010

NATALIES MOM AGAIN SO WE DID BLOOD WORK IT WAS HARD TO GET THE BLOOD OUT ERRRRR 5 STICKS AND ALOT OF HEPARIN AND PUMPING DID THE TRICK AND WE ALREADY GOT THE RESULTS SHE IS GOOD SHE CAN KEEP TAKING THE CHLOROTHIOZIDE HER SPEECH IS ALSO IMPROVING (THEY SAID IT WOULDNT ) SHE CAN OPEN BOTH EYES AND THEY ARE BOTH MOVING PROPERLY I ASKED THE HOSPICE NURSE ABOUT HER STINT IN HER KIDNEY AS IT IS ONLY SUPPOSED TO BE IN FOR 3 MONTHS AND WE ARE WORKING ON MONTH # 4 (THEY ALSO SAID THE STINT WAS PERMANANT BECAUSE SHE WAS DYING) SO SHE MAY BE GOING BACK TO THE HOSPITAL TO HAVE SURGERY AND SCANS THE SCANS SCARE ME I HAVE NOT SSEN A SCAN OF HER BRAIN IN AWHILE SO NO NEWS HAS BEEN GOOD NEWS NOW I WILL HAVE TO SEE THE SCANS AGAIN HOPE THERE IS NO PROGRESSION IF SHE IS ABLE TO GET THE SCAN BUT SHE IS LOOKING GOOD AND LOSING MORE FLUID EVERYDAY I WILL POST MORE PICK WHEN SHE WILL LET ME PUT HER CLOTHES ON HER THANK YOU ALL FOR YOUR PRAYERS AND SUPPORT KEEP THEM UP BRANDY (PRINCESS NATALIES MOM)

Friday, January 8, 2010

THIS POST DONE BY NATALIES MOM......WOW NATALIE IS DOING VERY WELL SHE IS ON CHLOROTHORIZIDE AND IT HAS SAVED HER LIFE SHE IS LOSING MORE AND MORE FLUID AND THE HOSPICE NURSE TOLD ME SOMETHING THAT LITTERALLY ALMOST MADE ME DROP TO THE FLOOR I THINK I HAVE FOUND A MIRACLE IF SHE KEEPS DOING WELL AND WE CAN GET HER UP THEY DONT SEE ANY REASON THAT NATALIE CANT RESTART TREATMENT IT FEELS SO GOOD THAT SOMEONE HAS FAITH IN MY DAUGHTER I TOLD HER ON HER BIRTHDAY "WELL BABE YOU MADE IT IT IS NOW YOUR CHOICE WHEN YOU WANT TO GO " AND SHE SAID "I AM NOT READY I LOVE YOU AND WANT TO GET BETTER AND I WILL" AND SHE IS THE STRENGTH OF A CHILD IS SIMPLY AMAZING I HAVE NEVER SEEN ANYTHING LIKE IT SHE IS AND ALWAYS WILL BE MY HERO SHE IS AMAZING THANK YOU FOR ALL OF YOUR PRAYERS THEY ARE BEING ANSWERED PLEASE KEEP PRAYING BRANDY (PRINCESS NATALIES MOM)

Tuesday, January 5, 2010

Hello all things have been good here I have been sitting up a little and doing alot more I even watched tv again although I am really sad my brother and sister are already back to school I am having my blood drawn today to see if I can still take my miracle drug and the only thing that works for me my hospice nurse said that I was 1/4 less of myself now because of my new meds so I really hope I can still take the she said as long as I dont hit a wall with my meds I may walk again omg would that make us all happy I decided yesterday I want a salt water fish tank woooohoooo fun for mom lol thank you all for your prayers and kind thoughts we had the best birthday party I was so happy and alert the whole time thank you all for your prayers muah huggs and kisses Natalie Nevaeh Coble

Saturday, January 2, 2010

Hello all I made it to the new year hopefully this one will be a little easier I had an amazing birthday it was great thank you all for the cards and well wishes and dari thanks for singing to me (loved it ) I still seem to be losing fluid my mom is going to try to elevate my bed today so hopefully I can breathe better I have a nasty chest cold that just wont go away I am on antibiotics but they dont seem to be working but all and all I am doing pretty well for a kid they said wouldnt make it to 2010 so keep up those prayers and well wishes they only make me stronger muah huggs and kisses Natalie Nevaeh Coble