OUR LITTLE ANGEL: August 2009

Why and How You Can Help

Please help me battle this inoperable brain tumor. I have finished my radiation treatments and my chemotherapy treatments have been stopped indefinitly due to my rapidly declining health. I am battling this beast with everything I have but it is starting to catch up with me now. My hospice nurse has told my mother that I may not make it to Christmas or my birthday and basically that all the fluid buildup is taking over my body. We are praying and hoping that I can make until then but have no idea how my health issues will play out in the forthcoming weeks. After being in contact with The Burzynski Clinic over the past few months we have determined that I will not be able to take part in his clinical trial. Mostly because of my health concerns. And with that being said we need more help now than ever before because mom and dad are still out of work so they can focus on me, my health, and keeping the rest of the household in good spirits. If anybody would like to contact us please do by emailing us at thenataliecoblefund@verizon.net. Any donations would be appreciated and would help with my daily needs that come along with this tumor. Thank you again and please don't forget to leave your comments down below so I have something good to hear everyday. Any donations can be sent to: Sovereign Bank 523 Nantasket Avenue Hull, MA 02045 C/O The Natalie Coble Fund

Monday, August 31, 2009

Hello all it is monday the 31st. we just got back from disney. I am not feeling well and have been real sick lately. I am headed to childrens hospital emergency room to see what is wrong and to have another ct scan. rip to my fellow dipg angel elizebeth from rockland ma everyone please say a prayer for her family.please also say a prayer for me as I head to the hospital . thank you all for all of your support muah huggs and kisses love Natalie Nevaeh Coble

Wednesday, August 19, 2009

Hello all it is getting closer to me going to Florida. I am really excited I cant wait to meet all of my friends .Life has been easy lately as I am now done with radiation .I really miss my doctor he was so sweet to me. i am leaving the 24th and i wont be back until the 30th hehe just in time for school .I am going to have my follow up mri on sept 9th and will get my results on the 14th so please pray for a miracle for me. thank you all for your love and support muah huggs and kisses Natalie Nevaeh

Thursday, August 13, 2009

Hello world another day done and another day closer. I am so excited to see the princesses .I did great in radiation and I even woke up in a good mood again thank you all for all of your support.My family and I really appreciate it.muah huggs and kisses Natalie Nevaeh

Wednesday, August 12, 2009

Hello all today was a good day. I went to radiation and woke up in a good mood. I ate kfc for lunch on the way home. (it stayed in my belly) I am almost done with my radiation only 3 days left. I will have a party at the hospital when I am done. I met with a nice person from Make A Wish today I am going to disney world. I cant wait to meet the princesses I told my mom I am buying one of everything there lol.I will make sure to post a whole lot of pictures. thank you all to date you have donated 160.00 dollars thank you so much muah huggs and kisses Natalie Nevaeh

Monday, August 10, 2009

Hello world today is Monday and I am home. yay five days left of radiation.I did ok today and now that they have adjusted my meds I am feeling alot better. Thank you all for your prayers through my tough times.p.s. I got alot of new beads from my stay at the hospital. muah huggs and kisses Natalie Nevaeh

Thursday, August 6, 2009

Hello world today is Thursday.I am very sick sorry we could not write yesterday. But I am in the hospital in icu.My heart is racing at 160.I cant walk .and for some reason my stomache is bleeding.I am non responsive.I dont know why I am so sick.I had a ct scan yesterday followed by an mri.sadly they say my tumor is growing.And the sack in the middle is bigger.Hopefully I wont slip into a coma. Witch could have devistating results.But I am a fighter and I will try with all my might to make it through this. And be back with you all again soon. Thank you for all of your support in this tough time. muah huggs and kisses Natalie Nevaeh

Tuesday, August 4, 2009

Hello all so sorry but it has been a rough couple of days.My mom met with my doctor on monday and errrrrrr. More bad news ....seems I have some sort of a sack inside my tumor. Not sure what it is and due to the location we will never know. We are coping as I guess we have to . I am really tired .Idont eat much either.Boy this is getting rough. Thank you to all that follow and support us through this.Muah huggs and kisses Love Natalie Nevaeh

Saturday, August 1, 2009

Hello all it is Saturday.Sorry I did not write yesterday.It was Friday and I got my tube out. I was so busy I wanted to do so much stuff.I went to the beach I went to the store. I had so much fun .I am getting tired very easily and my hair has fallen out into a mohawk.Thank you so much for donating to me as i am getting closer to getting what I need. You all make me and my family feel so special. Just to know that people are thinking of us. And wanna help us fight this. Thank you all Love Natalie muah huggs and kisses

My Story

Hello, my name is Natalie Coble. My mother gave birth to me on December 31, 2004. I have two brothers and one sister. Their names are Franklin, Machaylah, and Steven. We live a very normal life full of fun, laughter and most importantly, lots of love. The fun and laughter all came crashing to a halt on June 16, 2009. I remember waking up late that morning and getting ready for school. I was still tired and feeling a little bit dizzy, but nothing seemed to hurt anywhere. My dad noticed I was extra tired that morning, while getting ready for the bus, but nothing seemed to be wrong. I was just too tired, so I thought. I went to school happy as can be, until my teacher noticed my right eye starting to wander. She decided to test my vision and grew more and more concerned. She called my mom and asked her if I had bumped my head and then requested that we go to the doctor's and get a neurological exam. We went to South Shore Hospital and had them perform a neurological exam and they decided we should do a CT scan, which would only show the worst of the worst. After that was done we waited for the results. That didn't take long at all. The doctor told us I had a mass in my brain. He arranged an ambulance ride to Children's Hospital in Boston so we could have further tests and an MRI(that's when things started to get really scary for me). I really didn't like the ambulance ride at all because it scared me so much. We got to the hospital and one of the maintenance workers gave me a balloon. I thanked him a lot for that because it really cheered me up and it was my favorite color, pink. So we had more tests and more tests which took all night. I had to sleep at the hospital because I wasn't getting my MRI until the next morning. Mom and dad stayed with me throughout the night to make sure I was as safe and happy as possible. That day was so long and tiring for me that I didn't wake up until the doctors already did my MRI the next morning. It ended up being a good thing because that really would have scared me. Now all we had to do was wait for the team of doctors to tell us the results from the MRI. So we waited and waited and finally one doctor came in to tell us the diagnosis. He said to us that I had an inoperable tumor in the pons area of the brain stem. In doctor's words, a diffuse intrinsic pontine glioma. Our jaws dropped and our hearts stopped for a moment while we took it all in. They told us all we could do was try to shrink the tumor with radiation and chemotherapy in a range of different ways. They gave us a few days to decide what to do and we did just that. We chose to go through with radiation and no chemo for now. Radiation requires me to be sedated during the treatment so we had a portacath inserted in my chest so I wouldn't have to get poked by a needle every day for the next 30 days. I also have to take an anti-inflammatory medicine to keep the swelling down and boy does that stuff make me hungry. I also take anti-nausea medication so I don't get too sick from the radiation and the other medications. As the days go by we can only hope and pray that the tumor is shrinking. We have been battling our ups and downs for over a month now and have completed half of my treatment so far. Every day I go to the hospital for my radiation I become less and less scared. As we battle this cancerous tumor my mom and dad try any and everything to figure out what to do after the radiation if it doesn't shrink the tumor any. They have been looking all over the internet and have come across a couple of good options but will need all of your help raising thousands of dollars for my next course of treatment. So before you close your eyes for your good night's sleep, look at the skies above and pray for me tonight. Me, my mom and my dad greatly appreciate everyone's support throughout this unfortunate experience in our lives. THANK YOU EVERYONE FOR YOUR OUTPOURING OF SUPPORT!!!

Birthday Cards for Princess Natalie

Please show Natalie all your love and support by sending her a birthday card for her 5th birthday on New Year's Eve, December 31st.

Send one send two send twenty. The more people that know the more birthday cards she has to be read to her. Feel free to tell all your friends, family, co-workers, and anybody else that would love to put a smile on a sick child's face on what will probably be her last birthday if she can even make it to her birthday.

Please mail all birthday cards to:
Princess Natalie
24 Central Avenue
Hull, MA 02045

OUR LITTLE ANGEL

Why and How You Can Help

Monday, August 31, 2009

Wednesday, August 19, 2009

Thursday, August 13, 2009

Wednesday, August 12, 2009

Monday, August 10, 2009

Thursday, August 6, 2009

Tuesday, August 4, 2009

Saturday, August 1, 2009

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