OUR LITTLE ANGEL: December 2009

Why and How You Can Help

Please help me battle this inoperable brain tumor. I have finished my radiation treatments and my chemotherapy treatments have been stopped indefinitly due to my rapidly declining health. I am battling this beast with everything I have but it is starting to catch up with me now. My hospice nurse has told my mother that I may not make it to Christmas or my birthday and basically that all the fluid buildup is taking over my body. We are praying and hoping that I can make until then but have no idea how my health issues will play out in the forthcoming weeks. After being in contact with The Burzynski Clinic over the past few months we have determined that I will not be able to take part in his clinical trial. Mostly because of my health concerns. And with that being said we need more help now than ever before because mom and dad are still out of work so they can focus on me, my health, and keeping the rest of the household in good spirits. If anybody would like to contact us please do by emailing us at thenataliecoblefund@verizon.net. Any donations would be appreciated and would help with my daily needs that come along with this tumor. Thank you again and please don't forget to leave your comments down below so I have something good to hear everyday. Any donations can be sent to: Sovereign Bank 523 Nantasket Avenue Hull, MA 02045 C/O The Natalie Coble Fund

Wednesday, December 30, 2009

Hello all well it is almost my birthday and I am still here. I made it I have been feeling pretty good I got the best present today from angel elizabeths family it made me smile sooooo big I have finally lost a little more fluid I am so happy to be celebrating my birthday tomorrow thank you all for your well wishes and cards I love reading them muah huggs and kisses Natalie Nevaeh Coble

Friday, December 25, 2009

hello all I made it it is christmas and i am still here ha ha cancer I had a pretty good day I opened all of my presents BY MYSELF it was so much fun i got everything I wanted of course the new meds i am on seem to be working a little bit but I am very sleepy and did sleep most of the day I hope I dont keep my mom up all night again I also caught santa leaving my house and he laughed ho ho ho mom said there was no way i would see him huh shows her never doubt a child I told her i was going to catch him thank you all for your prayers and a special prayer to all of the familys living without your angels tonight 6 more days to go muah huggs and kisses Natalie Nevaeh Coble

Monday, December 21, 2009

hello all today the nurse is comming to see me it seems like i have fluid in my lungs again (very disturbing to hear) but i am still smiling and happy and i have already made it past what the doctors thought so thank you for your prayers and keep them comming my christmas present is i want to turn 5 only 11 more days to go woohooo thank you all again for you prayers support and mail it makes me smile muah huggs and kisses natalie nevaeh coble .....24 central ave hull ma 02045

Saturday, December 19, 2009

hello all so sorry it has been so long since we have posted alot has happened as you all know i am on lasix well my potassium level dropped critically low i am already on my max dose of potassium and eating bananas and drinking orange juice so we had to stop the lasix and wow the fluid is getting bad natalie has had fluid in her lower left lobe but we are somehow making it go away the oncologist said they will do no further treatment they wont even treat her kidney stones (i pull them out of her) ouch and she has been having alot of trouble pooping as well so we had to get that out too the swelling is getting bad hospice says she probably wont make it much longer but i have faith and i have hope for 13 more days we have already overcome so may odds whats 13 more days thank you all for your loving words prayers and birthday cards they make me smile muah huggs and kisses natalie and family

Friday, December 4, 2009

my benefit was so much fun thank you to all that attended. hospice was here today and it appears that natalies tumor is growing fast. at this point they say we will be lucky to have her on her birthday (december 31 st) this has proven to be very hard to let go but in the end i want her happy and running and playing she doesnt have any iv's or an ng tube but she cant even sit up anymore and her heart rate and breathing has changed alot her head it tilting and she just wants to sleep thank you to all that have been there for us and helped us through this horrific fight she has almost won (she will beat cancer one way or the other) i just want to put a bandaid on her brain and say it will be ok thank you all for you prayers and please continue them
brandy (princess natalies mom)

My Story

Hello, my name is Natalie Coble. My mother gave birth to me on December 31, 2004. I have two brothers and one sister. Their names are Franklin, Machaylah, and Steven. We live a very normal life full of fun, laughter and most importantly, lots of love. The fun and laughter all came crashing to a halt on June 16, 2009. I remember waking up late that morning and getting ready for school. I was still tired and feeling a little bit dizzy, but nothing seemed to hurt anywhere. My dad noticed I was extra tired that morning, while getting ready for the bus, but nothing seemed to be wrong. I was just too tired, so I thought. I went to school happy as can be, until my teacher noticed my right eye starting to wander. She decided to test my vision and grew more and more concerned. She called my mom and asked her if I had bumped my head and then requested that we go to the doctor's and get a neurological exam. We went to South Shore Hospital and had them perform a neurological exam and they decided we should do a CT scan, which would only show the worst of the worst. After that was done we waited for the results. That didn't take long at all. The doctor told us I had a mass in my brain. He arranged an ambulance ride to Children's Hospital in Boston so we could have further tests and an MRI(that's when things started to get really scary for me). I really didn't like the ambulance ride at all because it scared me so much. We got to the hospital and one of the maintenance workers gave me a balloon. I thanked him a lot for that because it really cheered me up and it was my favorite color, pink. So we had more tests and more tests which took all night. I had to sleep at the hospital because I wasn't getting my MRI until the next morning. Mom and dad stayed with me throughout the night to make sure I was as safe and happy as possible. That day was so long and tiring for me that I didn't wake up until the doctors already did my MRI the next morning. It ended up being a good thing because that really would have scared me. Now all we had to do was wait for the team of doctors to tell us the results from the MRI. So we waited and waited and finally one doctor came in to tell us the diagnosis. He said to us that I had an inoperable tumor in the pons area of the brain stem. In doctor's words, a diffuse intrinsic pontine glioma. Our jaws dropped and our hearts stopped for a moment while we took it all in. They told us all we could do was try to shrink the tumor with radiation and chemotherapy in a range of different ways. They gave us a few days to decide what to do and we did just that. We chose to go through with radiation and no chemo for now. Radiation requires me to be sedated during the treatment so we had a portacath inserted in my chest so I wouldn't have to get poked by a needle every day for the next 30 days. I also have to take an anti-inflammatory medicine to keep the swelling down and boy does that stuff make me hungry. I also take anti-nausea medication so I don't get too sick from the radiation and the other medications. As the days go by we can only hope and pray that the tumor is shrinking. We have been battling our ups and downs for over a month now and have completed half of my treatment so far. Every day I go to the hospital for my radiation I become less and less scared. As we battle this cancerous tumor my mom and dad try any and everything to figure out what to do after the radiation if it doesn't shrink the tumor any. They have been looking all over the internet and have come across a couple of good options but will need all of your help raising thousands of dollars for my next course of treatment. So before you close your eyes for your good night's sleep, look at the skies above and pray for me tonight. Me, my mom and my dad greatly appreciate everyone's support throughout this unfortunate experience in our lives. THANK YOU EVERYONE FOR YOUR OUTPOURING OF SUPPORT!!!

Birthday Cards for Princess Natalie

Please show Natalie all your love and support by sending her a birthday card for her 5th birthday on New Year's Eve, December 31st.

Send one send two send twenty. The more people that know the more birthday cards she has to be read to her. Feel free to tell all your friends, family, co-workers, and anybody else that would love to put a smile on a sick child's face on what will probably be her last birthday if she can even make it to her birthday.

Please mail all birthday cards to:
Princess Natalie
24 Central Avenue
Hull, MA 02045

OUR LITTLE ANGEL

Why and How You Can Help

Wednesday, December 30, 2009

Friday, December 25, 2009

Monday, December 21, 2009

Saturday, December 19, 2009

Friday, December 4, 2009

Blog Archive

Links

My Story

Our Family, Friends and Supporters

Natalie's Wishlist

Birthday Cards for Princess Natalie

Visitors

Pages