OUR LITTLE ANGEL: March 2010

Why and How You Can Help

Please help me battle this inoperable brain tumor. I have finished my radiation treatments and my chemotherapy treatments have been stopped indefinitly due to my rapidly declining health. I am battling this beast with everything I have but it is starting to catch up with me now. My hospice nurse has told my mother that I may not make it to Christmas or my birthday and basically that all the fluid buildup is taking over my body. We are praying and hoping that I can make until then but have no idea how my health issues will play out in the forthcoming weeks. After being in contact with The Burzynski Clinic over the past few months we have determined that I will not be able to take part in his clinical trial. Mostly because of my health concerns. And with that being said we need more help now than ever before because mom and dad are still out of work so they can focus on me, my health, and keeping the rest of the household in good spirits. If anybody would like to contact us please do by emailing us at thenataliecoblefund@verizon.net. Any donations would be appreciated and would help with my daily needs that come along with this tumor. Thank you again and please don't forget to leave your comments down below so I have something good to hear everyday. Any donations can be sent to: Sovereign Bank 523 Nantasket Avenue Hull, MA 02045 C/O The Natalie Coble Fund

Wednesday, March 17, 2010

thinking of you alot today

so miss natalie this is hard i know you would never trade where you are now to come back here but the selfishness in me wants you back although i do not want you sick seeing what cancer did to you was almost more than i could bare i have been told i am a strong woman but really i dont want to be strong i want you i want your hugs and i want to hear you yell out mom i need you or is it time for my meds but then i think about it no five year old should ever say is it time for my meds or when is my next scan or when is kathy and alice comming to take my blood or is janet (hospice nurse) almost here god this hurts no child should ever feel this kind of suffering i saw another child at walmart a little girl about 4 years old and she had cancer you could tell trademark signs bald skinny frail weak i froze and her mom looked at me and said shes only sick then just shrugged her shoulders while giving me a somewhat dirty look then i just began to cry i almost didnt say anything but then i did i said i am so sorry this is not fair no child should ever feel this pain and she said that i would never understand how hard it is to watch your kids like this i looked at her smiled and said i do understand i have been where you are are i know childrens and brigham and womens and dana farer like the back of my hand for i also have had a child with cancer and she then asked how my child was doing and i said she is cancer fee now and in no more pain she smiled then i said yup she had the best doctor ever fix her his name was god and she looked at me and just cried see even when you have a child with cancer you still want to believe that they will make it that they will be the one but you never know if people could just understand this and love their children just a little bit more kiss them one more time watch a movie together and take that extra picture and never forget this could be you one day so please help spread awareness
love and hugs
brandy (angel natalie's mom)forever 5

Friday, March 5, 2010

ONE MONTH

SO ITS BEEN ONE MONTH WITHOUT YOU AND IT FEELS LIKE AN ETERNITY I JUST WANT TO HOLD YOU AND KISS YOU AND TELL YOU HOW MUCH I LOVE YOU I MISS IT I MISS TAKING CARE OF YOU NO MATTER HOW HARD IT GOT I STILL LOVED IT THERE WASNT ANYTHING THAT THEY THREW AT ME THAT I COULDNT DEAL WITH UNTIL THAT AWFUL DAY I COULDNT MAKE YOU BREATHE I COULDNT MAKE YOU TAKE THAT BREATH I AM SO SORRY I DID NOT KNOW HOW TO FIX YOU I DID TRY SO HARD I WISH I HAD TRIED HARDER THIS IS SO MUCH HARDER THAN I EVER THOUGHT IT WOULD BE JUST ONE MORE HUG ONE MORE KISS ONE MORE TIME TO TELL YOU I LOVE YOU IF YOU ARE READING THIS BUT HAVE NEVER LOST A CHILD LET ME TELL YOU THIS IS REAL SHE IS GONE I WILL NEVER GET HER BACK AGAIN CANCER HAS TAKEN MY BABY NO MORE HUGS NO KISSES NO FIRST DAY OF KINDERGARDEN IT WAS ALL STOLEN FROM ME SO PLEASE HELP RAISE AWARENESS FOR MY CHILD THE CHILD NEXT DOOOR AND MAYBE EVEN YOUR OWN CHILD SOMEDAY CHILDHOOD CANCER SUCKS

My Story

Hello, my name is Natalie Coble. My mother gave birth to me on December 31, 2004. I have two brothers and one sister. Their names are Franklin, Machaylah, and Steven. We live a very normal life full of fun, laughter and most importantly, lots of love. The fun and laughter all came crashing to a halt on June 16, 2009. I remember waking up late that morning and getting ready for school. I was still tired and feeling a little bit dizzy, but nothing seemed to hurt anywhere. My dad noticed I was extra tired that morning, while getting ready for the bus, but nothing seemed to be wrong. I was just too tired, so I thought. I went to school happy as can be, until my teacher noticed my right eye starting to wander. She decided to test my vision and grew more and more concerned. She called my mom and asked her if I had bumped my head and then requested that we go to the doctor's and get a neurological exam. We went to South Shore Hospital and had them perform a neurological exam and they decided we should do a CT scan, which would only show the worst of the worst. After that was done we waited for the results. That didn't take long at all. The doctor told us I had a mass in my brain. He arranged an ambulance ride to Children's Hospital in Boston so we could have further tests and an MRI(that's when things started to get really scary for me). I really didn't like the ambulance ride at all because it scared me so much. We got to the hospital and one of the maintenance workers gave me a balloon. I thanked him a lot for that because it really cheered me up and it was my favorite color, pink. So we had more tests and more tests which took all night. I had to sleep at the hospital because I wasn't getting my MRI until the next morning. Mom and dad stayed with me throughout the night to make sure I was as safe and happy as possible. That day was so long and tiring for me that I didn't wake up until the doctors already did my MRI the next morning. It ended up being a good thing because that really would have scared me. Now all we had to do was wait for the team of doctors to tell us the results from the MRI. So we waited and waited and finally one doctor came in to tell us the diagnosis. He said to us that I had an inoperable tumor in the pons area of the brain stem. In doctor's words, a diffuse intrinsic pontine glioma. Our jaws dropped and our hearts stopped for a moment while we took it all in. They told us all we could do was try to shrink the tumor with radiation and chemotherapy in a range of different ways. They gave us a few days to decide what to do and we did just that. We chose to go through with radiation and no chemo for now. Radiation requires me to be sedated during the treatment so we had a portacath inserted in my chest so I wouldn't have to get poked by a needle every day for the next 30 days. I also have to take an anti-inflammatory medicine to keep the swelling down and boy does that stuff make me hungry. I also take anti-nausea medication so I don't get too sick from the radiation and the other medications. As the days go by we can only hope and pray that the tumor is shrinking. We have been battling our ups and downs for over a month now and have completed half of my treatment so far. Every day I go to the hospital for my radiation I become less and less scared. As we battle this cancerous tumor my mom and dad try any and everything to figure out what to do after the radiation if it doesn't shrink the tumor any. They have been looking all over the internet and have come across a couple of good options but will need all of your help raising thousands of dollars for my next course of treatment. So before you close your eyes for your good night's sleep, look at the skies above and pray for me tonight. Me, my mom and my dad greatly appreciate everyone's support throughout this unfortunate experience in our lives. THANK YOU EVERYONE FOR YOUR OUTPOURING OF SUPPORT!!!

Birthday Cards for Princess Natalie

Please show Natalie all your love and support by sending her a birthday card for her 5th birthday on New Year's Eve, December 31st.

Send one send two send twenty. The more people that know the more birthday cards she has to be read to her. Feel free to tell all your friends, family, co-workers, and anybody else that would love to put a smile on a sick child's face on what will probably be her last birthday if she can even make it to her birthday.

Please mail all birthday cards to:
Princess Natalie
24 Central Avenue
Hull, MA 02045

OUR LITTLE ANGEL

Why and How You Can Help

Wednesday, March 17, 2010

thinking of you alot today

Friday, March 5, 2010

ONE MONTH

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